Tag Archives: fibromyalgia

Year Long Endeavors

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The past few years have not been that great for me.  With each year I’ve noticed my health getting worse (fibromyalgia).  Every year I have always made up a list of goals for the next year and never get far because I never feel well.  At the end of the year, any goals that I didn’t get to just get added to the next years list with my new goals.  Only, I am getting to the point where I can’t do much at all.  So this year I didn’t make any “new year goals.”   I just decided to do as much as I can, when I can.  Every day is a new day and whatever it brings I will just have to roll with it.  If I can’t get out of bed than that is all I can do.

I did start a few year long endeavors but nothing that will throw me off if I miss a day.

  1. Temperature Scarf.  My oldest son Jared helped me with this a lot.  He went with me to Joann’s and helped me pick out 12 colors (including black).  Then we arranged them into a pleasing rainbow of sorts with the colors we deemed to be “cold colors” on one end and the “hot colors” on the other end.  Jared made my chart for me with a temperature range for each color.   I decided I wanted to show the extremes in temperature we get here so I divided the year into thirds.  The first 4 months I am checking the temperature each day and taking the low for the day I check my chart to find out what color to use.  I work one row a day based on the temperature.  After the first 4 months I’ll switch to the high temperature then back to the low temps for the last four – so it will be warm around my neck (where the middle is hehe)  I am almost finished  with January and I love how it looks already!  After the last day of January I’ll add a few rows of black.  I started with a few rows of black and I’ll end with a few rows of black and when it is all done I’ll add an edge of black.  That way it will look like a thermometer kinda.
  2. I joined a CAL (crochet a long) on ravelry.com that is making a 12″ x 12″ block every month.  They also vote for an extra 12″ square and there is also a 6″ square each month for people wanting to make a baby blanket or whatever.
  3. I joined another CAL (Official CCC Social group) that is doing a 12″ x 12″ block every WEEK!  (until Nov I think which leaves time to piece them together)  The last two pictures show the first two from this group.  They are so awesome!!!
  4. I also joined another crochet group that has several different CAL’s planned throughout the year.  Creative Crochet Crew Group has to be the best crochet group I’ve seen on facebook.   Their first project is starting on Feb 4th I believe and they are making the Magnificent Moss Basket.  They even have the designer in this group in case anyone has any questions.  This group is totally focused on crochet so no random chit chat about other things or negativity of any sort.  No knitting or other off topic things either.  That makes it really nice because it is such a large group.  I find so many wonderful patterns or ideas in this group.  The group I linked in #3 above is the social group where chit chat is allowed but not the negativity.  Both groups are awesome!

This link is to my Ravelry Project page for my 2014 blanket!  I’ll be adding each square as I do them so if you check back you can see all the patterns (which are all free).

When I finished the purple flower with the green part it made me think of a water lily so I made the rest blue.

When I finished the purple flower with the green part it made me think of a water lily so I made the rest blue.

So all of these “endeavors” are crochet related.  That seems to be the one thing that keeps me going.  Last year I was really into knitting but lately I only want to crochet.  I’ve been crocheting for most of my life (my sister started teaching me when I was 5) but I haven’t been knitting all that long.  When I am in pain and have a hard time focusing I go for the thing that I can do on autopilot.  It helps to keep my mind focused on something – something not to hard but hard enough to keep my mind off of hurting.  This may sound silly but if I am in so much pain that I can’t crochet, I actually try to mentally form the stitches in my head as a way to distract myself.  I think everyone with fibromyalgia has their little tricks like that.

Oh, I should add, I am doing all of these things using only yarn that I already have.  I have a lot!  I picked out four colors to make a blanket for my room.  Purple – Green – Blue – Cream   But, I am using different yarns and different shades of those colors in my squares.  I may even make some 6″ squares and group 4 together into a larger square.

Hairy Lavender Flower Square

I got the bright idea to use green fun fur with the white for the center of this square. Then I had to give it a haircut because it looked like an overgrown lawn!

Making a blanket to fit my bed might be overwhelming but making a 12″ square can be done in an hour or so.  When I don’t feel well it takes me all day but I still find myself waiting impatiently for the next one to be posted in each group.  In no time at all I will have enough squares to make my blanket and I really doubt it will take a year.  I’ll probably make a blanket for every bed in the house.

The flower in this one is two shades of blue but the darker shade looks gray in the picture.  There actually isn't any gray in this.

The flower in this one is two shades of blue but the darker shade looks gray in the picture. There actually isn’t any gray in this.

Purple flower circle square

Long time, no post…

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Yeah, it has been a really long time.  I haven’t been feeling well for about that long….  Fibromyalgia is sucking the life out of me.  I need to put up more of a fight.

I think I’ll get back to writing here because I need something to keep me going.  I’m working on getting back into reading too.  I didn’t read much at all last year.  It is so hard to focus and I find myself reading the same line over and over again and forgetting what I read.

Anyway, when I went to the doctor last week (I think it was) I had planned to do something before and changed my mind.  Whenever I leave the house in the winter the cold makes me start to hurt all over.  Usually, my husband drives me.  He picks me up in a warmed up car and drops me off right at the door so I spend as little time as possible in the cold.  Well, something came up and I ended up driving myself.  So, forgetting that I can’t do what I used to, I planned some other stops along the way.  Once I left the warm garage though and the cold air started seeping into the car I quickly changed my mind.  Instead I stopped into the Literacy Council’s used book store which is close to the clinic.  I picked up two books: The Inn at Rose Harbor by Debbie Macomber and Spirit Walker, a beautiful book of Indian poetry and artwork by Nancy Wood with paintings by Frank Howell.  I bought a copy of Spirit Walker for my mother in law and read it before I gave it to her.  I started tagging the poems I really liked with sticky notes and realized I had nearly tagged the whole book.  I was so surprised to see that book there so I bought it for myself.  The artwork is beautiful!  I saw the Debbie Macomber book when it first came out in hard back and decided to wait for it.  I finally found it in paperback and because my punch card was full I got it for free.

After my appointment I stopped by Joann’s to get some stuff to dress up a wallet box left over from Christmas.  I have grand ideas for this box.  I also joined this group on facebook called the Craft Hole that has challenges and swaps.  One of the challenges is “trash to treasure” and I signed up since that is right up my alley!  I’ve been sick with a cold though so I have’t been able to work on it.   I was getting worried I wouldn’t finish before the deadline which is the end of the month.  I’m feeling a little better though, so I started working on it last night.  So for I’ve just been painting it with gesso to cover up their logo and all the orange inside.  So it looks rather ghostly at the moment.  I’ll make a post later for that.  I’m still not sure exactly what I’m going to do next.

Anyway, I think it was Wednesday when I slept all day and woke up when my husband came home from work.  I wasn’t feeling well because of the cold but I wasn’t as achy.  I realized I was feeling more clear-headed so I decided to try reading the Debbie Macomber book.  I read several chapters and Ahhhhh!  I sure missed reading.  I even did 10 minutes on my stationary bike while reading since my doctor wants me to do at least 10 minutes of cardio a day.  Reading sure makes it easier and I managed to get through it without too much pain.  Hopefully I can continue doing that.

American Idol started Wednesday also and I love that show.  I didn’t love it as much last year but I’m loving it this year.  Harry is great! Adding him as a judge was such a great choice.  No more drama or cat fights between judges.  Maybe this year the show can actually be about the contestants.

Okay, back to work on my ghost box.

~ D

Cold and Fibro don’t mix

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“There are wounds that never show on the body that are deeper and more hurtful than anything that bleeds.”
― Laurell K. HamiltonMistral’s Kiss

 

I had to go out today to get more tulle to finish the tutu I was making.  I only had enough to do about half of it.  The girl at the fabric counter at Joann’s was really nice and helped me make sure I got the same tulle as last time.  There are so many next to each other that are close to the same color and I couldn’t find the bar code/tag info on them.  I didn’t think to take a sample of it with me but I had my receipt.  She used that to find what I bought the last time.

It was so cold outside (-43 below zero F) and windy so I was really bundled up and went from my car to inside really fast.  Normally I wouldn’t even leave my house in this cold but I just hate being stuck in the middle of a project.  I left the car running and the heat turned up so it would be nice and warm when it was time to leave.  After looking around for a while I had gotten hot and took off my coat. It’s a good thing I didn’t need much because all that gear takes up most of the cart.  Well when I went to leave I put all my stuff back on except my gloves and I didn’t zip my coat.  Big mistake.  My car was only about 15 feet from the door.  I dropped the keys though and I got so cold in that short amount of time because of the wind.  I hurried and got in the car which was really warm but because I have fibromyalgia getting cold had already started to cause my pain to flair up.  My hands hurt so bad.  After I got home I started feeling really tired and I couldn’t get warm!  I piled blankets on and turned the heat up but nothing seemed to help.  My restless legs also flared up too and that usually doesn’t happen during the day.  After taking all of the different medicines I needed and huddling under the blankets again I finally started to relax and got some rest.

So now I’m awake but still achy and shivering.  I really want to work on the tutu or my crochet project but my hands hurt too bad.  I think I’m going to try running a really hot bath with epsom salt and take a long soak.  Hopefully that will chase away the cold.

I need an Eboost!

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Another thing I found in the Holiday Voxbox I received complimentary from Influenster was Eboost.  I decided to have it hot like tea and it was delicious!  I had been so cold and tired and it was great hot like that.  I especially loved the fact that it makes 12 oz so it isn’t just a small shot.  It is something I can sip on for a while in my huge red cup.  It would also be good in cold water with a little ice!   It isn’t too sweet like a lot of drink mixes like this are. They use Stevia to sweeten it which is what I normally use.  I didn’t feel a huge or sudden surge of energy but I had been feeling really tired and rundown all day so it was great to feel normal for a while so I could get some things done.  I think this product would be a great thing for me especially because of my health problems.  I have fibromyalgia and a weakened immune system which causes me to get sick easily.  This has a lot of vitamins so that is a “boost” I could really use and I don’t have to worry about crashing later.  It is a natural boost which would probably be even more effective with continual use.

Eboost

I’m going to use it to help me with my weight loss.  After being down for so long with chronic pain I have weak muscles where most people don’t even realize they even have muscles.  Exercising hurts and really drains me.  I’m going to use Eboost to help with my energy level and start off slow 10 minutes a day and work up from there.  I made a fitness board on Pinterest featuring Eboost along with some other things I’m going to try this year.  

Of course I couldn’t have gotten a better flavor.  I got Acai/Pomegranate and I love Pomegranate!  All the flavors sound good though.  There’s also Orange, Pink lemonade & Super Berry.  I really want to try the Super Berry since I love berries.  Click here to read supplement facts for the different flavors.  While I was at their website ( www.eboost.com ) I was able to enter my email in a box that popped up to receive a coupon for a future purchase and they said if you follow them on facebook you can get a free sample the next time they have a giveaway.  

I found Eboost on Amazon.com with free supersaver shipping but I’m hoping I’ll see it in the local stores here.  You can also order it from their website and they have free shipping right now in the continental US.  You can read reviews here on influenster’s website.  They sent these boxes out to several people around the US as a complimentary gift for testing purposes.  That is what I did.  After we test a product we go write a review and tell them whether we liked it or not so much.  So check it out and see what other people thought of Eboost.  

Brand new Beginnings

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“Though no one can go back and make a brand-new start, anyone can start from now and make a brand-new ending.”
― Carl Bard

I have been trying to lose weight and it is hard.  I have fibromyalgia which makes exercise painful.  I have to be really careful about what I eat but so far I have just managed to stay even.  I am not gaining or losing.  I get really frustrated but I know there is no point in looking backwards.  I’m not saying I haven’t done that though.  It is easy to think, “why, did I let this happen in the first place?”  but it is only natural to gain as you get older and dealing with chronic pain makes it even harder to stay fit.  So, I love to reflect back on this quote and know that I can start again, try something new, and make a brand-new ending.

I’ve got some ideas and I’m anxious to try them but for now I have to remember to love myself in the body I have.  After all, it’s all I’ve got.

A great website for support groups is at www.dailystrength.org  No matter what you need help with, you will find other’s that are in the same situation and will stand with you, encourage you when you are down and lift you up.

Ironically, I didn’t use the wordpress daily prompt today but it still fits in!

Daily Prompt: Quote Me

Feel free to join in.  Click the link above and share what your favorite quote is.